I collect commencement speeches. I love them. People who have worked with me know this factoid. I can even be pretty annoying about it. I will even make you sit and watch them during faculty meetings. There are no bigger speeches in life than commencement speeches. This is the speech of reality. This is the […]

People keep telling me how “brave” I am.  I appreciate the compliment, but it is not deserved nor the compliment that is warranted.  Let me be clear that this journey is not an act of bravery. People who run into burning buildings. Brave. People who free climb. Brave. Stupid, but brave. People who try something […]

You just got to laugh. I got a few calls last night around 8ish (I think).  “Do you have lights?!” from frantic voices on the other line. My favorite comment was: “I heard Manhattan has a power outage and I just assumed that must include you. Or is it just your apartment? That sounds likely […]

You made me smile.  Like a real-life genuine smile.  Both Steve and I. Guess who called? Someone from Option Care. To apologize. We were prepared and were able to name 7 different points of malpractice and they listened and we’re horrified. YOU made a difference. WE made a difference. In the Jewish tradition, this is […]

We’re on different time zones and we can’t get a good connection.  Loads of static.  “Can you hear me?!” “Can you hear me now?!” CAN YOU HEAR ME NOW?! We are about twelve hours apart. I’m in New York and he’s in China. We have to yell. How else can he hear me? How else […]

I have something I need you to do. CALL THIS NUMBER. 1-866-827-8203. Ask to speak to Tex Sarah Jackson. I think that is her name. YELL AT THEM. YELL AT THEM FOREVER. VENT. GET ANYTHING OUT THAT YOU WANT TO GET OUT. Tell them about Jacob. Tell them about you. About your laundry machine being […]

Dear Playmobile,On behalf of ALL of us, all the parents of the world, I am reaching out to give you some feedback. You SUCK. Your instructions are disabled as the word “instruct” means that they say actually something, you teach. However, these “instructions” have ZERO words and are drawn to not instruct, but for me […]

Spent time with Benno today.  It is amazing how he walks in this world. Everyone enchanted. Uber drivers to strangers in the elevator, just enchanted. “How old is he?” The question always asked. Followed by “Did he just say XXX?” with bursts of laughter. Benno knows all catchphrases or idioms (sophisticated ones) and uses them […]

I have a problem and its not healthy. It doesn’t serve Jacob. It definitely doesn’t serve me. It doesn’t serve anyone. It makes this process harder…,especially for Steve.  I don’t sleep. I only think.  When talking to a friend the replay was: “Of course. You want Jacob to be okay. You are going to be […]

I’ve never run a marathon before and I don’t plan to. What a ridiculous idea! The body was never meant to run 26 miles. Our bodies were meant to escape predators, but only at fast spurts. There was never an evolutionary advantage to sustain a steady beat for 26 miles. You would be dead by […]