A mother's journey through Children's Neuroblastoma
I’m realizing that the narrative in my head is not quite complete. Nope. That is not even a fair description. It is totally inaccurate. When reading THIS. It was like I was reading someone else’s story. My eyes rapt with this stranger’s tragedy. Turns out depressive people like tragedies. Note: I have NOT watched the Hands …
Continue reading “If you can’t trust yourself, who can you trust?”
Holy shit. It has been a while since I read my blog. I am back in it so I can learn from the past PTSD cycles and thank you past self, it’s all very helpful. All the research is right there to reread and all the results of past treatments are there to learn from. …
Going on four. Four days. Day one was really dark. Just the understanding that there will be a day two, three, four, five…was enough to put me in tears for hours. I don’t have time for this. I don’t have minutes to spare! Days? Absolutely not. It’s odd that even though I know what it …
Note: everyone is healthy!!!! Everyone. Steve got elective surgery for acid reflux. He has more sexy battle wounds. Written: Friday, June 10th I’m back. Back In the room of waiting and I have to tell you oddly home like.The dings. The alarms. The chairs. Sunk right back into them. And I see that they got rid …
The lego block. Pure genius. Even as toys get more complex with remote controls and flashing lights, the lego block remains supreme. Fads come and go, but there is always lego. Its pure simplicity is its brilliance, but also its power. A block with endless possibilities. A unit of wonder. A cell that can be …
We have all been so challenged as parents these last years. Having to explain things that we never thought we would have. We explained to our children the need to wear masks, we explained why they can’t see grandma. We did unthinkable things, but that is what we do. We protect our children. And now …
Dear friends of MYX, At MYX, experience is everything. It’s what we do best. A MYX education is more than credentials, our students get hands-on, real-world experience applying their new skills and kicking the tires on potential academic and career pathways. The MYX Project, is one of the integral parts of a MYX education. Through …
She was the last one standing. I wonder what that is like being last. I don’t think any of us envision being the last one standing. Instead we envision our funeral full of people swapping stories and passing tissues, but what if there are few people who know your story left? My last grandmother died. …
He was getting annoyed, I could tell. His gaze following me across the room as I place the third meal of the night in front of Jacob. Yes third. I may have overdone those prayers in the hospital praying for him to eat. He eats! But back to the child that never eats, Benno. I …
It’s been two years of attempting to get this secret. It has taken a soft persistence and, yes, a bit of manipulation, but I did it. I got the secret. I got him to spill the beans. I first noticed the secret on birthday number 7. Jacob, a child who is not one for quiet …
Nightwing 