Category Archives: Uncategorized

Jacob’s scans were clear!!! We are still in remission. Very thankful. We are going into memory-making mode. OVERDRIVE. We have three months until the next scans. That is three months! That includes SUMMER. We can have a summer. Last night Steve confided in me that all he has wished for was to have Jacob on […]

New normal.  I hated that phrase. It would illicit a good eye roll from me every time. And I heard it a LOT. Even cancer moms would say it to me. The trauma of scans and life in the hospital will become “normal.” It will become easier. This was a ridiculous thing to say from […]

I’m married to a pessimistic realist. He’s pretty much the killjoy of any party.  Excited that the growth curve is declining in New York? Oh, Steve will kill that. “It will be going up! The virus is mutating.”  Love how kids are making masks? Steve’s got ya. “They are using improper materials. Who’s teaching these […]

Jacob is angry. Jacob is crying all the time. Jacob is yelling. Jacob is picking his skin until it scars. I am worried about Jacob and also at my wits end with him. It’s a strange place to be. It’s a  strange place to parent. As you know he has been through a lot, but […]

I can’t write. I always write about how I am feeling, but now I can’t do that anymore. It’s just an endless cycle of pity, guilt, and gratitude. REPEAT. REPEAT. REPEAT. STEP #1: PITY. I wake up with a pit in my stomach. So frustrated by the reality of my life. Upset about so many […]

I may have pictured it differently (very differently), but hey beggars can’t be choosers. Today Jacob went to “school.” He went to the Kindergarten assembly. He was beaming. Of course, playing it cool on camera, but he just couldn’t stop listing the names. There’s Aerin! There’s Ryan! Look Liam. Hey Mira. Hey Becket. Jacob has […]

Did its job:) I love that all of you have started such games with your own family. That is the ultimate goal! Creating community! I get giddy when I hear of your own Hunker Games. Therefore, we are declaring the winners of our little hunker games and ending its reign as you continue to build […]

Education is getting its day. That is for sure.  Everyone is talking about education. You included. My favorite part is watching the private sector roll out plans for reopening. They think they have it all covered. “We will take everyone’s temperature. We will stagger everyone’s arrival. We will make rules in the elevator. We will order […]

I saw the future. I saw the heavens. I saw it all. Steve has always brought home toys. Always. He has an even “kickstarted” a few of them and I remember the first iteration of this miraculous invention, I remember it. I remember being obsessed. I remember going go on and on about it to […]

When things were really dark this summer… When I was living in the hospital with Jacob and left alone at night to google searches of stats of Jacob’s diagnosis, I called a friend in desperation. “What if he doesn’t make it. What if this is just the beginning? You can’t tell me that Benno won’t […]