I’m moving to Brooklyn. I think I always wanted to be able to say that (not actually do it though!). I’m a hipster now. I may even start drinking craft beers. Isn’t that what you do in Brooklyn? I’m moving to Brooklyn WITH Jacob. We are going to live on the boat in Brooklyn the …
Author Archives: abbybrody
I have two blogs
I don’t write much about Steve. Maybe you’ve noticed. You may find that odd if you know us. That is because Steve doesn’t exist for me. We don’t see each other and when we do, I can’t. You see… I write and he reads. He reads everything. He knows every clinical trial, he knows every …
Night “off”
Jacob wanted Mema to sleep with him. That’s Steve’s mom. Whole blog on that…just not sure she would want me to publish, but basically I’ve had a “night off,” I wasn’t sleeping over. Everyone was encouraging me to do this and seemed to be the right thing for Benno. I could put Benno to sleep. …
Strawberry Fields
Strawberry fields. That is Jacob’s favorite song. I never knew that before. It turns out I didn’t know a lot before. I should know these things. I never thought before to ask. You really get to know someone when you live in 150 square feet 24/7. I ask him everything. I want to know every …
Back to our usual scheduled programming: The Benno Show
There is another child. His name is Benjamin to some, but Benno to many. Everyone knows Benno. He has a magic and a charisma that captures every person in the room. He is eight but acts like an aging 70 year old, complaining about his hips and telling restaurants that its “a little too loud …
Continue reading “Back to our usual scheduled programming: The Benno Show”
Monday: Calling Friends of Nightwing
An update on Jacob. He had a really good day today. Treasuring this day. He laughed, he played, and he even walked across the room to ride in his red wagon. He is doing amazing! He is so 💪 . He finished his first round of chemo drugs today and he hasn’t thrown up. Not …
Silver Lining
I live my life on “shuffle.” It’s a golden rule. My music is always on “shuffle.” I guess it’s some superstitious belief. Not sure what its about, but I believe songs are meant to play when they are “supposed” to be played. Leave it to chance. Songs can set moods and can send your day …
Friends of Nightwing
Dear friends of Nightwing, I’m shaking as I write this after receiving another package. I feel so filled with love. Jacob feels so filled with love. My whole body thanks you. My whole soul thanks you. The love. God the love I feel. The gifts that have arrived, the notes that have shown up in …
Fortune Cookies
Today Jacob woke up and asked why we never have fortune cookies anymore. Again…so random. Where do these thoughts come from? I wish I could climb into that brain, suck up the cancer, and then just get a peak into how that thing works. The thoughts of children have always intrigued me. Maybe thats why …
Trip advisor review: ⭐️⭐️⭐️
By Jacob Brody this is written yesterday but didn’t have time to post. Everyone, rightfully so, wants to know how Jacob is doing. In the past couple days he has gone “under” 3x, had a blood transfusion, had pieces of bone and it’s marrow along with a sample of his tumor surgically removed and has …
Nightwing 