Walk in. Walk off.

We remain in awe of Jacob. He continues to walk in. He did so last week and will again this week. 

He walks in to walk it off.

We are in the FINAL phase of treatment. I can’t believe I’m even saying that. It took 16 months to get here, but it is so sweet. This phase is the vaccine trial that has had great results in preventing relapse. So thankful to be here.

When meeting with the doctor prior to the vaccine he went to great lengths to tell us that it is very painful. This was concerning as prior to immunotherapy he never gave such a warning and that was unbearable to watch. 

The vaccine is a shot of the immunotherapy drug. Unlike the immunotherapy sessions, it is quick, but patients do not get the high dose of pain meds like when in immunotherapy sessions. “It will be excruciating and then over, but don’t be shocked if he starts screaming.” 

We were given advice too. Best thing is to “walk it off.” Walk the pain off.  Now how do you tell a six year old writhing in pain to “walk it off?” It seemed unfathomable and I was ready for a disaster.

But that is exactly what he did. He walked it off.

“Go walk it off buddy” and in that pain he did just that.

When we told him the next week we were going in to do it again?

He walked in.

And then walked off.

We will continue to do this walk for the next year. 

Jacob, per usual, will lead.

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  1. Wow. He is amazing. Really amazing, I can’t wait to see him … and you!

    Wilens told me you are renting a place in EH!! Whoooop!

    Well now I can’t wait any longer! Hope you had a good holiday. and now that its over let me know when you have time for a beach walk. Xox

    Jamie Roy 917-576-5228


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